THE BLOG

Recommended Resources and References for Neurodiverse Patients

Jul 08, 2024

Dylan Atler (they/them), founder of NeuroQueer.org, recently guested on the QueerCME podcast to discuss their top recommended resources for neurodiverse patients. Their expertise and advocacy in creating inclusive, supportive environments for neurodiverse individuals shine through in their curated resource list. Dylan emphasizes the importance of understanding and addressing the unique needs of neurodiverse patients, advocating for tailored approaches in healthcare settings. Through NeuroQueer.org, they provide valuable insights and tools to help both patients and healthcare providers navigate the complexities of neurodiverse care with compassion and expertise. For those interested in furthering their knowledge and enhancing their practice, Dylan’s resources are indispensable.

Resources & References: 

To see the benefit of ADHD Coaching: database of coaching research related to ADHD and executive functioning.Digital Database (springerinstitute.org)

 

World Federation of ADHD Practice Guidelines, ADHD Coaching: A Guide for Adults with ADHD - ADHD Federation (adhd-federation.org)

 

ACO Home | ADHD Coaches Organization (memberclicks.net)

 

 Neurodiversity and Gender: Queer and Neurodivergent Liberation are Entwined - Stimpunks Foundation

 

(PDF) Extending the Minority Stress Model to Understand Mental Health Problems Experienced by the Autistic Population

 

McConnell, Elizabeth A et al. “Multiple Minority Stress and LGBT Community Resilience among Sexual Minority Men.Psychology of sexual orientation and gender diversity vol. 5,1 (2018): 1-12. doi:10.1037/sgd0000265

 

Medical biases keep LGBTQ+ BIPOC from seeking ADHD and autism care (prismreports.org)

 

Mental Health Disparities for Transgender, Non-Binary Patients: Study (additudemag.com)

 

Neurodivergence & Co-occurring Conditions - Heale Collab

 

Tackling healthcare access barriers for individuals with autism from diagnosis to adulthood | Pediatric Research (nature.com)

 

LGBTQIA Youth: Mental Health Support Through Inclusive Care (additudemag.com)

 

New anti-trans laws target autistic youth and those with mental health conditions (19thnews.org)

 

Creating accessible healthcare environments for people with autism | Nursing Times

 

Collaborative Care for ADHD: Integrated Model for Doctors, Psychiatrists, Social Workers (additudemag.com)

 

Moreno A, Laoch A, Zasler ND. Changing the culture of neurodisability through language and sensitivity of providers: Creating a safe place for LGBTQIA+ people. NeuroRehabilitation. 2017;41(2):375-393. doi: 10.3233/NRE-172187. PMID: 28946588.

 

Hillier, A., Poto, N., Schena II, D., Buckingham, A. and Frye, A. (2022), "An individualized life-skills coaching program for adults with autism", Advances in Autism, Vol. 8 No. 2, pp. 104-116. https://doi.org/10.1108/AIA-08-2020-0051

 

Karolinska Institutet. "Adult ADHD is linked to numerous physical conditions, study finds." ScienceDaily. ScienceDaily, 7 July 2021. <www.sciencedaily.com/releases/2021/07/210706191617.htm>.

 

Transgender and nonbinary people are up to six times more likely to have autism : NPR

 

George R, Stokes MA. Gender identity and sexual orientation in autism spectrum disorder. Autism. 2018 Nov;22(8):970-982. doi: 10.1177/1362361317714587. Epub 2017 Sep 15. PMID: 28914080.

 

Posar, Annio, and Paola Visconti. “Long-term outcome of autism spectrum disorder.” Turk pediatri arsivi vol. 54,4 207-212. 25 Dec. 2019, doi:10.14744/TurkPediatriArs.2019.16768

 

Voltaire S, Steinberg H, Garfield T, Chvasta K, Ardeleanu K, Brown M, Shea L. Inextricably tied: Nonbinary autistic individuals' views on how their gender identity and autism are connected. Autism. 2024 Jun 5:13623613241257600. doi: 10.1177/13623613241257600. Epub ahead of print. PMID: 38836348.

 

O'Shea A, Latham JR, McNair R, Despott N, Rose M, Mountford R, Frawley P. Experiences of LGBTIQA+ People with Disability in Healthcare and Community Services: Towards Embracing Multiple Identities. Int J Environ Res Public Health. 2020 Nov 2;17(21):8080. doi: 10.3390/ijerph17218080. PMID: 33147846; PMCID: PMC7662209.

 

Strang JF, Knauss M, et.al A Clinical Program for Transgender and Gender-Diverse Neurodiverse/Autistic Adolescents Developed through Community-Based Participatory Design. J Clin Child Adolesc Psychol. 2021 Nov-Dec;50(6):730-745. doi: 10.1080/15374416.2020.1731817. Epub 2020 May 6. PMID: 32375521.

 

Goetz, T. G., & Adams, N. (2022). The transgender and gender diverse and attention deficit hyperactivity disorder nexus: A systematic review. Journal of Gay & Lesbian Mental Health, 28(1), 2–19. https://doi.org/10.1080/19359705.2022.2109119

 

ADHD in Females Across the Lifespan and the Role of Estrogen | The ADHD Report (guilfordjournals.com)

 

Ahmann E, Smith K, Ellington L, Pille RO. Health and Wellness Coaching and Psychiatric Care Collaboration in a Multimodal Intervention for Attention-Deficit/Hyperactivity Disorder: A Case Report. Perm J. 2019;24:18.256. doi: 10.7812/TPP/18.256. Epub 2019 Oct 23. PMID: 31710834; PMCID: PMC6844547.

 

Wentz E, Nydén A, Krevers B. Development of an internet-based support and coaching model for adolescents and young adults with ADHD and autism spectrum disorders: a pilot study. Eur Child Adolesc Psychiatry. 2012 Nov;21(11):611-22. doi: 10.1007/s00787-012-0297-2. Epub 2012 Jun 27. PMID: 22736195.

 

Duerksen K, Besney R, Ames M, McMorris CA. Supporting Autistic Adults in Postsecondary Settings: A Systematic Review of Peer Mentorship Programs. Autism Adulthood. 2021 Mar 1;3(1):85-99. doi: 10.1089/aut.2020.0054. Epub 2021 Mar 18. PMID: 36601268; PMCID: PMC8992890.



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